Friday, March 4, 2022

Hey...Google!

Wednesdays are always a busy day...but who am I kidding, with Tina every day seems busy. While we were doing our morning chat Tina took a call for another appointment.  I said tell google to remember for you.  Tina said, "hey google, add to my calendar...." and there she had it!  So now with all her appointments she can add them to her own personal artificial intelligence.

Oh, can't forget to mention that Tina's neighbour brought over banana bread on Tuesday and when Tina called to thank Francis she said to let her know when they wanted more.  

Before we had talked to Tina, Janelle, the homecare angel, had been there.  Mom was there and chatted with us for a bit.  She had made a homemade chocolate pie for company.  An old friend came to visit.  Steve was actually in Carol's friend gang but we always shared our friends because our house was the hangout house.  We had a pool table, ping pong, darts and Pop Shoppe for purchase so who wouldn't want to be there.  Oh, and we had pretty cool parents too!

Steve brought gift cards from his mom, Lorraine.  She was a faithful lady in our church where we grew up and it was very thoughtful to bless Tina this way.

Tina then went for a mammogram....too much information?  We want you to understand that even the most regular, routine things are much more difficult when you are dealing with ALS.  For any woman that has had this unpleasant exam, you need to be able to undress, be put in awkward positions and be able to move your arms in very unnatural ways.  This is hard for most women but for someone with ALS I couldn't imagine.  They were really good and very understanding.  They provided Tina a chair instead of standing.  We are so thankful for people that understand and help.

After that appointment, Tina had a staff meeting.  It amazes us how she keeps busy.  Abby, Tina's manager told her about some case studies.  One of them was being done in Montreal and one in Ottawa.  



Thursday...."Hey, google, what's on the calendar for the day?"

  • 9:00 a.m. - Janelle, the wonder woman of Homecare - shower and hair wash!
  • 10:15 a.m. - chat with sisters
  • 11:00 a.m. - Physiotherapist, Jennifer "doing extremely well" - a few new exercises
  • 12:30 p.m. - Occupational therapist, Kathleen - found a walker that should work
  • 1:30 p.m. - Nurse Intake, Amanda - oxygen 95 (we think it was 91 last time) and blood pressure 120/70 - doing good!
And today....the walker arrived.

Tina can still walk around but if the ground is uneven then she could use the support of this walker and give her the stability to keep from falling.

Donna, a friend dropped some food off through the day and then Barry and Judy (our first cousin) came and brought supper.  They didn't just drop it off.  They stayed and had supper with them and Tina loves it when this happens.  It's a double treat....food and a visit.

Another week has finished and hopefully the weekend is less busy for Tina and she can enjoy a little time away from Google!

If you are in the Napanee area and would like to become a part of the army that is helping Tina with meals, please click on the link below and you can chose your day/time and meal.  You can chose to drop off or better yet, set the table and eat with them at their house.  The meals are really appreciated.  


So I bought something today to hang in our bedroom and I thought I would share it with all of you.

Thank you to all those that have helped in whatever way. We have all been amazed by the outpouring of love and we especially appreciate your prayers.  💓

Hey, I see that Jennifer Lepage is following the blog.  Interesting story about Jenn...we had someone run into our house when we were living in Swift Current (should have locked the doors) and we had to call the city detachment for police help and in came Cst. Lepage (nee Steele).  I was reunited with a cousin!  👮🚓

We are all STEELE standing!!

Hey google....say thanks to everybody!!!

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