ALS Awareness Month

What’s the response when you tell someone that your sister has ALS?

Most of the time it is, “I know someone that had/has that.”

Once in awhile, someone will say “what is that?”  That is one of the reasons that Tina wanted this blog.  She wanted people to walk beside her on her journey and see what ALS takes from you.  ALS, also gives in Tina’s case, so many wonderful support people who have helped and continued to help in so many ways.

This month I am going to copy some facts from ALS Canada so that we all can better understand this disease and how research and trials need to be done.  The facts are hard and cruel and much of it we would like to ignore but unfortunately it is happening to our sister.

About ALS

Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down, someone living with ALS will lose the ability to walk, talk, eat, swallow, and eventually breathe.

ALS is not contagious. There is no cure for ALS and few treatment options for the majority of people living with the disease. Approximately 80 per cent of people with ALS die within two to five years of being diagnosed.

Copied from https://als.ca/what-is-als/about-als/

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Tina and mom were sitting outside this morning enjoying the sunshine in Ontario.  Tina has some concerns about our cottage time.  Will we be able to handle everything that needs to be done?  We are STEELE Standing, aren’t we?  We can do this and we will have fun trying.  Life isn’t always easy but as we support each other we can make good memories along the way.

Thank you for STEELE Standing with us!❤️