I better not wait too long before posting my next blog. We appreciate all those that show so much concern for us and want to make sure that we are STEELE Standing.
On Monday, Tina had a full day of activity. Her Homecare worker came in the morning to get her ready for the day. The nurse came to check in on Tina through the day. She had Respite for the afternoon.
Vicki came for a visit.❤️
On Tuesday, the Homecare worker came in the morning and mom was there to spend the day. Tina called a little later than usual because her and mom were outside. Carol and I often wait until Tina calls us because she is the busiest one with all of her appointments. Ron and I were on our way to Calgary when the call came in. I had to have my four year follow up appointment for my thyroid cancer....all good!!😃
Tina went shopping with mom and Austin. Mom had a bit of struggle getting Tina up the ramp and then ended up banging the wheelchair a little bit in the store....the good news is that Tina still has her feet....the bad news is that she now has to put both feet on the one foot rest. Ooops!🤪
Tina and Mom figured out that even wheelchair bathrooms are not always wheelchair accessible. We may never notice these things. Mom and Tina went into the bathroom and the wheelchair accessible stall was right when you open the door. While trying to maneuver Tina into the stall, they were blocking the door.
Tina said that the shopping trip was successful. She was looking for some new pants. She said that it was a little tricky. She needed comfy and also needed them easy for others to pull up. Am I giving too much information? This is the life of an ALS person. They slowly give up their independence and not all people are so positive about it as Tina. We are so thankful for her attitude. The shopping consisted of Tina picking out pants that she liked. If they passed her test then she would ask mom to have them pass hers. Finally, the votes were in and new pants were purchased!👖
On Wednesday morning, mom was back with Tina for the day. The schedule was a busy one. She had physio scheduled and then Paramed was coming. They are responsible for Respite which consists of a few hours each week. They came to ask questions about how it was going. What is Tina asking the person to do and is this enough hours for her?
I asked Tina how her mobility was. We don't see her moving too much when we are doing our video chats and sometimes we only see the top of her head or the ceiling. 👀She said that since her hospital stint she has lost most of her arm movement. She can move them a little more in the morning than later in the day. Sometimes Tina has chips at night and she works hard to get them up to her mouth. That is called incentive physiotherapy. 💪 Mom said that Tina can still walk with help. We are hoping that this is a plateau and that it will last for years. Of course, we really want to see it reversed altogether.🙏
Our morning chats usually consist of a little entertainment. This morning this little ripper was playing with both a cat and a big dog. Auggie is great amusement. Carol has had so much sadness and this little guy is letting a little bit of sunshine back in. He also gives her lots of work!
Carol also has some other exciting news to share. Xarra, Carol’s only daughter, is expecting!
A new little life is expected on or around November 9th. It’s so refreshing to be able to share good news!
So April has been more than a tough month but we are ending it with something exciting to look forward to.
We are all STEELE Standing. We are STEELE looking ahead and we STEELE appreciate all of you!
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